Adults with Arthritis: Summary results from our survey

Last autumn, we worked with Juvenile Arthritis Research and Arthur's Place on a joint survey to understand more about the experience of living with arthritis as an adult.

Findings from the survey will be used to:

  • help develop new services to meet the needs of our communities

  • share findings with clinical teams to help them improve services & help target future research

  • support and bring awareness of activities and things that matter most to those directly affected.

A summary of the findings are captured below:

Of over 570+ responses:

  • 93% had a diagnosis of arthritis, or other rheumatic or musculoskeletal condition

  • Over half of respondents also had at least one other autoimmune or autoinflammatory condition.

The survey asked participants to reflect on their experiences over the past two weeks:

The survey demonstrates the impact of living with arthritis, with respondents reflecting on the widespread impact of arthritis - which is significant, affecting every aspect of their lives.

What next?

JAR continue to analyse the detailed results, and aim to publish these in the coming year, sharing this research broadly at scientific conferences and events. They also aim to develop new services and support models to help those affected, in response to the feedback of survey participants.

Previous
Previous

Podcast: How to build a supportive community with Kate Middleton CEO & Founder of The Wren Project